I Hate my Kitchen!

Let me describe my kitchen. I live in an old house in Seattle that is roughly 800 sq ft; in other words TINY. The kitchen is the largest room of the house, taking up about a third of the space. Large kitchens are usually a great bonus, but not in this case…in this case the kitchen is ineffectual and utterly irritating.

To start with, it has only one counter and the space is taken up by the sink and the dish rack I must have because there's no dishwasher (oh the agony!). The counter is also pretty useless because there is not a single outlet anywhere near it. No place for a toaster or a microwave. No place to make waffles or smoothies or mix cookie dough. So my appliances are scattered throughout the room on various pieces of furniture not intended to be in kitchens. The only viable work space for preparing anything is the small table we eat on, and it has to be dragged near the back wall to reach the outlet.

The second source of my frustration is the stove, an ancient 1960s retro monster. It has two small burners (one doesn't heat up all the way), one large burner (crooked), and instead of a second large burner it has a crock pot built in. The oven is small, has only one shelf, and doesn't maintain a constant temperature because the heat escapes from the door. The only thing that is good about the stove is that it is so large it has extra drawers to store pots and pans.

The third issue I have with the kitchen is that a portion of it is completely taken up by the back door, which must be open at all times. What? Let me explain. This lovely old house has the luxury of a laundry room because the owner decided to convert the back porch into an enclosed space. Unfortunately, they took two short cuts when they built it. The first is that they left the original back door in place, doorbell and all, and simply added a second back door. The second is that they didn't bother to insulate the room. So, the door from the laundry room to the kitchen has to be open all the time so that the pipes don't freeze (don't even get me started on what an expensive waste of energy this is). Now we could, theoretically, shut the door during the summer, but we'd need to open it to get in the house so the space behind it would still need to be left open.

My final complaint, and this is really what spawned this rant, is that this relatively large, spacious kitchen has a vast expanse of white no-wax floor. Dirt sticks to it, molds to it, becomes one with it, and it seems that no amount of scrubbing on ones knees for hours will ever get it clean. I have to use a special cleaner and within hours of cleaning it's dirty again. We could get rid of the cats and use the front door to come in the house, but even then I doubt it would make a difference. I spent a good part of today trying to clean the damn floor and I gave up with exhaustion after getting to about a quarter of it. Does that quarter look sparkling and new? Hell no! There's still dirt and grime that no amount of scrubbing can clean. As a perfectionist I find it exasperating that I can't get it clean, and I can only imagine how frustrated I'd be if I had OCD. As a chemotherapy patient I have to be satisfied with how it looks now because I simply do not have the energy to do any better. SIGH

Good news...or is it?

Okay let me recap; about a month ago my CT scan results were questionable. In the words of the specialist who looked at them: "The same or worse." Monday I had another scan and got the results on Wednesday, which are "The same or better." It is clear that the tumor is not growing out of control, and that's a good thing, but what the hell is going on? Well, it's tricky because the two remaining tumors on my liver are each about the size of a pin head. In my doctor's words, "The same person could look at these scans seven different times and get seven different measurements." I've progressed into a gray area where there's no way of knowing if the tumors are active or not. Even though they show up on the CT scan does not necessarily mean that they're alive. They could be empty husks left behind when the large tumor died, or they could be a few resilient cancer cells that are resisting the treatment but too starved to spread out. So, the plan now is the same as it has always been…same treatment and the same schedule with scans every couple of months. If there continues to be no change for several more months then I'll have to decide if I'm ready to stop the chemo and just do maintenance therapy to keep the cancer in remission. It's a scary concept because as soon as my body is no longer toxic soup, whatever cancer cells are still hanging around could then flourish and spread. Many cancer patients have a great deal of trouble transitioning because the fear is always there. The chances of a stage 4 cancer returning are extremely high, so learning to live with that reality will be a challenge in itself. I remember after I was diagnosed with Epilepsy in my teens that I spent a great deal of time in fear of my next seizure. To some degree I've come to terms with the fear, but every morning I still feel a twinge of it (I have waking seizures). The same will be true of cancer, but the difference is that a seizure is unlikely to kill me but cancer is definitely deadly.

Ode to Shadow

Wolves were my favorite wild animals until I started learning about bats. They still draw my awe for their extreme wildness, their power, their beauty, their sense of community, their important and necessary part in the food chain, and their struggle against all odds to not become something of myth and legend. So when I met one, well he was really only half wolf, I fell in love instantly.

His name was Shadow and he lived in Canada with his people in their home on the edge of a wildlife refuge. This place was so remote it was only accessible by boat despite being completely connected to the mainland. They didn't breed him, (it's illegal to own or breed wolves or part wolves in the US, but I'm not sure what Canadian laws are) they merely provided an excellent home for a creature that would otherwise have been destroyed. Shadow was so gentle and kind and proud and protective that the only thing wolfish about him was his body.

My dad was staying at the home of Shadow's people to take care of him and his pal Bear (dog had huge paws!) while they were on a safari for a month. The whole family went up to visit Dad and once there I pestered my dad to tell me all he knew about Shadow. He told me stories about Shadow chasing away skunks, vandals, coyotes, and even a bear. Every time a boat passed too close to the dock he'd jump up from his place just inside the front door and run as fast as a greyhound down the dock. To see that massive black dog fly down the dock was impressive; to hear him bark was down right bone chilling.

Even as old as he was he still protected his home with all his energy, and that was despite nursing an injured paw. When my little niece stepped on it accidentally he jumped up and barked in her face. Just one bark, one loud, bone chilling wild wolf bark. He couldn't help it, and you'd do the same thing if someone stepped on your injured foot. She couldn't help but be scared, and started to cry. Her mom picked her up and sat with her to calm her down and Shadow followed them and sat at their feet with his head between his front paws. Once my niece calmed down and understood why he had barked she got down and sat next to him to pet him gently. He put his big ol' wolf head in her lap and looked at her with his soulful eyes begging her to forgive him, and I walked away with tears in my eyes.

I spent a good deal of my time up there hanging out with Shadow. He made a nice pillow and liked that I provided a shield from the wild and crazy youngsters running around. As you can see from the picture, when he lay down and stretched out he was almost as big as I was. In the other picture he is sitting in his spot with a full sized couch behind him. I just found out recently that he passed away, so this is my tribute to the gentle wolf that stole my heart.

I'm Tired of This

It's late, or early, and I can't sleep. What's worse is I also cannot write. I'm tired. Tired of posting these silly updates on my cancer saga that no one reads. So I'm done. I mean I'll still post because I'm addicted to this self-indulgence, but no more play by play accounts of chemo and life with cancer. I figure I'll have cancer-related news from time to time, but mostly I'm going to focus on more entertaining things.

Calling it quits

I've finally quit my job. It was just too difficult for me to continue such a high pressure job. My boss was frustrated with me. I was frustrated. It was just a bad situation. In the beginning the job was a great distraction, and it kept me upbeat and positive. It has become a major source of stress and that was beginning to have an effect on my health. Finances will be tight, but Peter and I think we can do it, at least for a little while.

This is my life.

The holidays were rough, but I made it through. The last CT scan showed improvement, but Dr. Lee's not ready to call it quits. So, there's still no end in sight. It's finally beginning to take its toll on me. My mind doesn't work as well as it used to. My body is worn out. I've tried to keep these posts positive for the most part, so I've left out a lot of the unpleasant details. Truth is I'm sick and tired of being sick. On top of the treatments, my body has been forced into menopause resulting in hot flashes, night sweats, and all the other wonderful things I didn't expect to experience until much later in life. The weight gain as a result of the steroids (they control nausea) is depressing, and I can't really exercise because my heart has been weakened by treatment. The acid reflux is god awful, I swear one good belch and I'll spew acid. I get up, I work, I come home and crash. This is my life now. I sigh. Forgive me for my self-pity. It's been an especially difficult week.

One year later...

My next chemo treatment will be this Friday, December 15th, 2006. Almost to the day one year ago I had my first chemo treatment. When Dr. Lee told me the treatment of my cancer would be very aggressive I didn't imagine I'd still be doing this after an entire year. Just thinking about it makes me feel exhausted. I honestly don't know how I've managed to come this far. All I know is that I've had a lot of help along the way and for that I am very grateful. I just had another CT scan today; hopefully it will show that the cancer is completely gone. Then I might be finally able to stop this marathon of chemo treatments.